Finally, some sleep, for me and the Master. It prepared us for the ball of kah-ra-zee around here this morning.
I awoke to see Angela, our surgeon's Nurse Practioner, smiling and talking to Luke at his bedside. It was really sweet. He was bright-eyed and looking right back. Finally, a glimpse of the Luke we know. She was encouraged by his diapers (he had a few more overnight), but the NG tube output was not slowing down or turning colors (green to yellow to clear) and his belly was still pretty distended. Dagnabbit.
After a quick x-ray, Dr. Meyer came in and he wants to hold off on feeds for another day. The x-ray did show that the NG tube was too far down, so we pulled it back (yeah, that was a fun screaming session) and hoped that it might help.
About a half hour later, my dad showed up with the girls. They decorated Luke's white board with the dry erase markers and wrote a cryptic message in Swahili. Then, the toy cart came by with any free toy of their choosing. They deemed the Dell Children's Medical Center the greatest place on earth. While they were here, our favorite neonatologist stopped by, Dr. Michael!! Ok, one of the favorites, we have many. The NICU had gotten our birth announcement and saw the note that he was having surgery on Friday. It was a little like old home week. Dr. M was excited to see how big he'd gotten and promised to be back this week. He left us with his traditional, "Good job. Carry on!" and a thumbs up. Boy, I've missed that. Just before he trotted out, we told him about having to page the NICU nurses the night before for a new IV. As an aside, he said, "Well, give us a call and I'm sure we can scare some up for you, if you need another IV." Hahaha. Yeah, joke was on us later. Told ya it was nuts here this morning.
Right after he left, the "Vascular Team" showed up to draw some blood from Luke. We needed to make sure his blood levels were within the normal range. More screaming.
After THEY left, Luke got pretty irritable, so we started doing some searching. Guess what needed replacing? Yeppers. The IV.
Enter the PICU Transport Team. A tad more screaming. After one unsuccessful stick, they gave up and we called in the experts...God love those NICU nurses. What would Luke do without them? And, it wasn't just any nurse that knocked on his door, it was his primary, Kristy. YEA!! Clearly, we were cramping Luke's social calendar this morning so he had to come up with excuses to see everyone in the hospital, all before lunch.
While they were searching for a good vein, Fr. Dean, Luke's Godfather stopped by for a peek. I think the needles freaked him out, so I gave him a quick tour of the wing. Ten minutes later, Kristy and Co. had finished the IV and it looked stellar, as suspected. Another beautiful IV. Another happy dance from Scott and I.
Luke crashed and Scott and I had a "date" with our lunchroom trays in the room. Ah, can you feel the romance? Hey, it was as close as we get these days. I pumped, then took a quick nap while Scott held Luke. Evidently, my lunch was spiked with Ambien because I was O-U-T and missed the best news of the day. Dr. Meyer and the NP stopped by, looked at Luke's belly, ordered the NG tube out and gave us the blessing to start feeds. WHAT? Scott's reply was classic, "You mean,
today?" And here we thought the day was going to be uneventful. Tisk, tisk.
We happily pulled the tube (I so would've done it if I'd had an RN after my name) and gave Luke his first feeding - a whole 1/2 an ounce. Normally, he eats about 4oz., but a half is better than nada. He sucked it down, didn't spit up a bit, gave me a big burp and promptly filled his pants. That was the happiest diaper change I've done. Ever. Scott happily bounded out of the room and headed home to take care of the crew and relieve Papa. A friend and nurse, Janet, stopped by and we had some well-earned laughs. Oh, and Janet's given me a new career option, nursing. I told her I'd get on that after I finish my book :-)
Papa showed up at my door with a Sonic vanilla Dr. Pepper in hand and made my day. He was here for the next feed, and Luke had an encore performance. It was lovely. Dad was even able to stay for a bit and rock Luke to sleep. Aww.
So, moral of today? The day ain't over til it's over.
As I sit here and write my reflection, I'm feeling a little/lot overwhelmed. If Luke hadn't had a stay in the NICU and been transported to Dell, look at the friendships we would've missed out on making with our doctors and nurses. If Luke hadn't had his challenges, we wouldn't have reconnected with so many friends from so many walks of life. If Luke hadn't joined our family with such drama, this blog would only have it's faithful 8 readers. If. That's a loaded world... Funny how God's plan is so masterfully crafted.
While there are many moments where I want to wish Luke's challenges away, I have to pause and think, "This life is as it should be." Luke is fearfully and wonderfully made to perfection, at least in His Maker's eyes, even though to human eyes he has challenges. Who am I to mess with His perfection?
God, even in the moments when I think we can't do "one more {fill in the blank here}", you show me that we can. More and more often I'm finding myself thanking God for this new journey in parenthood. And that's definitely not a statement I could've made 11 weeks ago.
I didn't think it was possible...
to trust you this much,
love a life this much,
honor and be in awe of my husband this much,
to rely on my friends this much,
to learn this much,
to want to glorify you regardless of the outcome this much.
Now our eyes have been fully opened. And as painful and bright as the sunshine may be, I am grateful. Here's to more progress tonight!